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The John Paul Jr. Huntington's Disease Foundation, Inc.


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$169,000 has been raised for UCLA Huntington's Disease Research and growing

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About Our Foundation

Formed in 2013 to support John Paul Jr.'s pursuit to promote awareness, raise research dollars and to help with the advancement of finding a cure for Huntington's Disease (HD).  Although he was not able to live to see the cure, all of his efforts will help the future of his children and countless others facing horrific neurodegenerative diseases.  We raise awareness and research dollars by promotion and events.  All proceeds after expenses go directly to Dr. Susan Perlman's Research Fund at UCLA.  

To view our IRS Status on the 501c3, click on the first link below.  At the landing page, select SEARCH TERM / ENTER EIN NUMBER:  Then Enter:  46-2349288

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Our Mission

We exist to honor and continue the legacy of John Paul Jr. by raising awareness and much needed research dollars towards the cure of Huntington's Disease.  Developing better treatments and finding a cure for HD will be vital for improving treatments and curing this cruel neurological disease along with Parkinson's and Alzheimer's disease.

John Paul Jr.

The Man Behind the Cause


Working with UCLA Neurology

Raising Awareness and Research Dollars

What is Huntington's Disease

Huntington's disease is a horrific, hereditary, neurological disease.  The symptoms of HD are sometimes described as having ALS, Parkinson’s and Alzheimer’s – simultaneously.

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“Everything that is done in the world is done by hope”

Martin Luther

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The John Paul Jr. Wellness Center

Currently seeking a major corporate sponsor to turn this vision into a reality.

The John Paul Jr. Wellness Center will be a collective of services and information created to provide centralized access and support for patients suffering from devastating neurological diseases.  This center will allow others to benefit from all that was learned during John Paul Jr.'s battled with Huntington's disease.  

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Dr. Susan Perlman's Research UCLA

HDBuzz - Huntington's disease research news

Huntington's Disease Society of America

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Contact Us

The John Paul Jr. Huntington's Disease Foundation

6526 S. Kanner Hwy., PMB 284

Stuart, Florida  34997

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