Each event has raised much needed dollars towards research for UCLA Neurology. To date we have raised more than $169,000 and growing.
Stay up to date HD news and The John Paul Jr. Huntington's Disease Foundation, Inc. by reading our News section below. We’ll keep you informed about upcoming events, programs and activities, as well as special fundraisers. Make sure you don’t miss out on a thing.
John Paul Jr. Celebration of Life Fundraiser
September 27, 2021
Ed Justice Jr. (@edjusticejr on Instagram) said it beautifully. "A celebration of life for John Paul Jr. was held this past Monday in Los Angeles. The list of attendees was impressive, some zooming in like Brian Redman, James Weaver and Chris Dyson to pay tribute. I was asked to conduct the emcee duties and it was my pleasure for sure.
"50/50" Fundraising Dinner
August 29, 2019
This event was the result of a brainstorm shared by Peter Bourassa and Paul Russell after reading Sylvia Wilkinson's book "50/50" - The Story of Champion Race Car Driver John Paul Jr. and his Battle with Huntington's Disease. Peter enlisted the aid of racing legends Lyn St. James and Tommy Kendall and together, this vision became a reality. Our foundation was able to present a check to the UCLA Department of Neurology to further Dr. Susan Perlman's research towards the cure to end this disease along with related Alzheimer's and Parkinson's disease.
"50/50" Book Signing Event
December 1, 2018
A very special book signing event was held at Autobooks - Aerobooks in Burbank, California, for "50/50" The Story of Champion Race Car Driver John Paul Jr. and his Battle with Huntington's Disease. World renowned author Sylvia Wilkinson and John Paul Jr. spent several hours signing books for enthusiastic friends and fans. Proceeds from the sale of this book go directly to Dr. Susan Perlman's UCLA Neurology Research Fund.
HSR Sebring Fundraiser
Seven champion race car drivers and one rock star racer competed in a Porsche 935 (JLP-HD1) to help raise funds and awareness for Huntington's disease. It was a 4 hour endurance event at the famed 3.7 mile Sebring International